Owen Gaudin has higher than average listening skills for his age, is a great story teller, and loves dancing to music. He is also profoundly deaf. The Blenheim toddler had surgery for bilateral cochlear implants when he was just six months. Owen’s mum Kate White says the technology is a “modern miracle”.

“He now has age-appropriate speech and continues to come out with new words and sentences. It is phenomenal that modern technology has gifted him this,” says Kate.

“It has been the hardest and the most rewarding thing we have had to go through. When I found out that Owen was profoundly deaf I cried all the way home thinking he was never going to say mum or dad, or hear our voices. He can now say a lot more than that, and he continues to blow us away. “I still get emotional talking about it. The gift of sound is the best gift we could have given Owen. His progress is incredible, he comes back from preschool full of stories and we are so proud.”

Owen’s assessment and cochlear implant surgery was provided by the Southern Cochlear Implant Programme (SCIP). He continues to receive speech and language therapy from SCIP’s Christchurch team.

 

Owen

A little over a year ago, a whole new world of sound and possibility opened for Kathryn Collins, who had been living with hearing loss since she was 24.

Kathryn

In May of 2018, life for the Osborn family changed forever. Having lived with hearing loss that progressed to deafness for nearly two decades, Maree, a Christchurch grandmother, was given back the gift of sound through a cochlear implant and the impacts for her and her loved ones have been monumental.

Maree, born with full hearing, had been losing the sense for the past 18 years. Three years ago, she became profoundly deaf. “I started with having significant drops in my hearing,” says Maree. “I couldn’t hear my family properly; every day was hard and I developed coping techniques over the years to try and compensate for my hearing loss. I was lip-reading, making sure I was standing in front of people so I could get some sense of what was going on, and constantly straining to hear.

“What I didn’t realise was how much I was in denial and how bad it had got,” she says. “In recent years I isolated myself, I was too scared to leave the house, doing normal things like doing the grocery shopping or answering the phone became impossible. I avoided people because I was terrified they would ask me something and I wouldn’t be able to hear or respond. I lost friends, I lost my social life. I was living in a silent world, a world where I felt like I was a burden so I cut myself off.” One of the worst things for Maree was not being able to spend quality time with her grandchildren. “The relationship you have with them is such a special one and we were all missing out on that,” she says.

For Maree, a Teacher Aide, this isolation and lack of independence really began to take its toll and she had to leave her beloved profession and became more and more reliant on her husband, Bruce.

For him, it was heartbreaking to see his once spirited wife sink into sadness and fear. “It was painful to look at her and see her struggling,” says Bruce. “But it comes your ‘normal’. It took a lot of getting used to and we just had to carry on as best we could despite the challenges.

“In essence I became her caregiver, she couldn’t drive or go anywhere alone. Of course, I did everything I could for her, but it changes life as a couple completely when someone is unable to hear. I remember her nearly getting run over in a carpark and that was the straw that broke the camel’s back.”

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Finally, with Maree’s hearing completely diminished, the couple were desperate for a solution and were referred to the Southern Cochlear Implant Programme (SCIP). “I was anxious going into SCIP for the initial testing because I didn’t know what to expect,” says Maree. “Would an implant help me? Would I be able to hear again if I got one?

“I remember the team making me feel at ease and my fear then began to turn to excitement. I was on a waiting list for some time and that was hard, so when the email came in from SCIP saying that I was going to be able to get an implant I nearly fell over!”

“I don’t think I have ever responded to an email so fast!” says Bruce. “We were elated that something could be done to help Maree and we were hopeful of what it might bring.”

A few weeks later, and Maree was operated on. In the following days, she was anticipating her switch-on – the moment when the implant is activated and hearing is restored. “When it happened I thought I could hear a tweety bird,” says Maree, “but the SCIP staff told me it was voices and I was so excited!” It had been years and years since I had been able to hear my loved ones and to be able to do that again, and so quickly, was the best outcome I could have imagined.

“It was overwhelming, it was like getting my life back again. I walked outside and could hear the birds in the trees, the traffic, the sound of my own feet on the path. I had gone from complete silence to being able to appreciate the little things.

“I was just so thankful – I remember rushing back inside to thank everyone at SCIP and I just kept saying it over and over again. I couldn’t express how much it meant to me.”

For Bruce, he too was struck by the experience. “It wasn’t until that moment I realised the weight of Maree’s hearing loss had had on our family. It was like the whole thing had been lifted off our shoulders,” he says.”

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From switch-on, Maree is now on a rehabilitation journey. “It’s like your brain goes to sleep when it doesn’t need to interpret sound,” she says. “I am having to relearn how to differentiate sounds now, but with each appointment and the help of the SCIP staff my progress has been amazing.”

“The difference in Maree is phenomenal,” says Bruce. “Before we couldn’t enjoy things like other couples – going to the picture theatre, having the grandkids over to stay, going out with our friends. Now it is like we have a whole new lease of life, we’ve regained the past 18 years of our marriage and more. We are happy just to be able to do simple things and enjoy being together. And of course we feel younger!”

“Sometimes we even just go to the beach so we can listen to the waves crash against the rocks,” adds Maree. It seems like something so small, but it is hugely significant to me.”

With possibility now opened to Maree and Bruce, they are making plans to do all of the things they’ve been unable to do in the past 18 years. There is a holiday on the horizon – new places and people would have been unmanageable for a non-hearing Maree. And Maree is contemplating going back to work, something she truly loved. “I am not scared anymore,” she says. “To be able to contribute to my family and the community again is truly life-changing.

If you’ve had something, and it’s taken away, you really know what you have lost. To get it back again is nothing short of a miracle.”

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Maree

Addison received a double cochlear implant at the age of 14 months. Getting both implants at once meant her family could focus on getting Addison through speech therapy to bring her up to speed with other children.

Addison, who cannot hear or speak, was the first victim of a series of nationwide failures in hearing tests for newborns.

A Ministry of Health investigation this year found eight screeners, out of about 108, had not followed protocol by either screening the same ear of a baby twice, or their own ears instead of the baby’s.

Addison’s hearing loss was not picked up until she was 10 months old.

One cochlear implant is publicly funded, but a second one usually costs the family $50,000. If carried out at the same time as the first one, the cost reduces to $34,000.

Getting both implants at once meant the family could focus on getting Addison through speech therapy to bring her up to speed with other children.

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Addison